Cerebral palsy (CP) is a broad term used to describe a group of disorders that affect the ability to move and keep one's balance and posture as a result of an injury to the brain. A child with cerebral palsy may be simply a little clumsy or awkward, or unable to walk at all. It is the most common cause of motor disability in childhood today.ii
There are many possible causes of cerebral palsy and these can occur during pregnancy, delivery or the first years of the childs life, including:iii
Factors associated with an increased risk of developing cerebral palsy include:3, iv
An estimated 1.5 to 2 million children and adults have cerebral palsy in the United States, with about 10,000 babies and infants diagnosed with the condition each year.v An additional 1,200-1,500 preschoolers also are diagnosed with cerebral palsy annually.4 Sixty-five percent of children with cerebral palsy will have some degree of mental impairment.vi The incidence and prevalence of cerebral palsy continues to increase worldwide, due to the significant rise in premature infant survival rates and increasing number of multiple births.
The socio-economic costs of cerebral palsy can be debilitating; the average lifetime expenditure for a person with cerebral palsy is nearly $1 million. It is also estimated that the lifetime care and medical costs for all people with cerebral palsy born in the U.S. in 2000 alone will total $11.5 billion.vii
There is currently no cure for cerebral palsy and no standard therapy that works for all patients. Because the neurological damage that causes cerebral palsy often occurs during pregnancy, prevention is difficult. Diagnosing cerebral palsy also presents unique challenges, since symptoms may not be seen in a child until they are old enough to exhibit individual growth patterns and behaviors.
ii Centers for Disease Control and Prevention. Learn More About Cerebral Palsy. http://www2a.cdc.gov/podcasts/media/pdf/CerebralPalsy.pdf. Accessed April 2008.
iii National Institute of Neurological Disorders and Stroke. Cerebral Palsy: Hope Through Research. http://www.ninds.nih.gov/disorders/cerebral_palsy/detail_cerebral_palsy.htm?css=print. Accessed April 2008.
iv United Cerebral Palsy. Cerebral Palsy – Facts & Figures. http://www.ucp.org/ucp_generaldoc.cfm/1/9/37/37-37/447. Accessed April 2008.
v United Cerebral Palsy. Cerebral Palsy Fact Sheet. http://www.ucp.org/uploads/cp_fact_sheet.pdf. Accessed April 2008.
vi 4 My Child. The State of Cerebral Palsy – Facts and Figures. http://www.cerebralpalsy.org/what-is-cerebral-palsy/statistics. Accessed April 2008.
vii Centers for Disease Control and Prevention. Economic costs associated with mental retardation, cerebral palsy, hearing loss, and vision impairment ? United States, 2003. MMWR. 2004;53:57-9
Receive regular updates from the Dallas Hextell Foundation.
"My husband and I had never heard about banking our baby's cord blood until we met Cynthia. I was pregnant with our son at the time. She told me about Dallas and I followed up with some research of my own and found it was something I thought we should do. I talked to my husband about it and at first he had some questions. I directed him to this website and he watched Dallas' story for himself. It moved us both to where we truly felt we would be doing our son a disservice by not banking his cord blood. There was so much peace of mind that came from our decision. Our son is 4 months old now and, although he has a clean bill of health, we feel much better knowing if something were to happen we are prepared to offer him every treatment option we can. We are so thankful to the Hextell's for informing us about this amazing science!"
-Travis, Lauren and Rylan Brown
"It was a year ago, at a family gathering when my husband's cousin told us of the very successful treatment of your son using his cord blood. Our daughter was expecting her second child, so we inquired about saving Emily's cord blood based on your story. We were sent the information and decided to have her cord blood preserved. We followed all of the procedures, the kit was sent to our daughter, her doctor was informed, and the cord was saved and picked up shortly after her birth. We are happy to have done this for our granddaughters as we understand that the cord blood can also be used for Taylor, the older granddaughter, (with a little less effectiveness) if the need arose. Thankfully, so far both girls are healthy and developing normally. Taylor is almost 3 and Emily is 5 months old. We would not have considered this option had we not heard of your son's remarkable progress. Thank you."
-Susan Schmiedt
"My husband and I had never heard about banking our baby's cord blood until we met Cynthia. I was pregnant with our son at the time. She told me about Dallas and I followed up with some research of my own and found it was something I thought we should do. I talked to my husband about it and at first he had some questions. I directed him to this website and he watched Dallas' story for himself. It moved us both to where we truly felt we would be doing our son a disservice by not banking his cord blood. There was so much peace of mind that came from our decision. Our son is 4 months old now and, although he has a clean bill of health, we feel much better knowing if something were to happen we are prepared to offer him every treatment option we can. We are so thankful to the Hextell's for informing us about this amazing science!"
-Travis, Lauren and Rylan Brown
"Prior to the birth of our second son, Roman, my husband and I were faced with a very important decision, whether or not we should spend the money to bank our son's cord blood? It was a question we did not have to think twice about because we had experienced first-hand the benefit's it provided to our best friend's son, Dallas Hextell. Seeing the progress Dallas made and the milestones he has reached made my husband and me true believers in the potential of cord blood. At that time, the decision to bank cord blood allowed us the knowledge that we had already started making the right choices for the new addition to our family. We both hope we will never have to use the cord blood we banked, but know we never wanted to say the words, "we wish we would have."
-Josh, Rachel, Dillon, and Roman Castellanos
"I have just given birth to my first baby girl and throughout my pregnancy I kept thinking of Dallas and the amazing story of his cord blood. Dallas is lucky his parents had the foresight to spend the money because not all people are educated enough to see the value. I made it a point to make my fiance aware of Dallas' story so he would be on board to bank our daughter's cord blood when the time came. He was amazed by Dallas' story and jumped right on board with the idea. I am a 35 year old, who knows what has happened with my own health over the years, I wanted to ensure my daughter's future health by banking her cord blood. I think it's such an amazing discovery, the ability to bank and use cord blood to treat diseases. I really hope this technology saves many more children in the future. Mia Isabella born October 2nd, 2008 has blood banked to keep her safe."
-Jennifer Maynard-Laabs
"I was pregnant when I learned about banking cord blood. My husband and I spoke with my doctor and our pediatrician about doing this and were told it wouldn't hurt to do if we could afford it. Dallas's results following his cord blood infusion was the only proof we needed. Cynthia and Derak's foresight and Dallas's bravery convinced my husband and I to bank our daughter's cord blood. Hopefully we'll never have to use it, but knowing it's there should something happen to her or our family is a comfort."
-Justin, Karyn, and Alanna Warner